tag:blogger.com,1999:blog-6811945558877221270.post7565809753351995885..comments2024-03-27T21:57:54.772-07:00Comments on A Perfect Extra Chromosome: Adele Has Down syndrome!A Perfect Extra Chromosomehttp://www.blogger.com/profile/08589374230086756438noreply@blogger.comBlogger8125tag:blogger.com,1999:blog-6811945558877221270.post-83434139402511673842014-09-19T12:08:27.174-07:002014-09-19T12:08:27.174-07:00Sherry, thank you so much. I have to tell you that...Sherry, thank you so much. I have to tell you that your comment made me smile and gave me a lot of comfort. Please give Sally a great big hug from all of us! xo<br />KristaA Perfect Extra Chromosomehttps://www.blogger.com/profile/08589374230086756438noreply@blogger.comtag:blogger.com,1999:blog-6811945558877221270.post-2522586057853575012014-09-19T11:37:26.040-07:002014-09-19T11:37:26.040-07:00Adele is beautiful!! My sister-in-law Sally has Do...Adele is beautiful!! My sister-in-law Sally has Down's and just celebrated her 62nd birthday!! She lives in a group home with her friends and is the life of the party. We see her as often as her busy social schedule allows!! lol Anonymoushttps://www.blogger.com/profile/05629571395636659496noreply@blogger.comtag:blogger.com,1999:blog-6811945558877221270.post-82783560508167618882014-09-19T09:54:54.373-07:002014-09-19T09:54:54.373-07:00Hi Louise,
Thanks so much for the message, I reall...Hi Louise,<br />Thanks so much for the message, I really appreciate it. You said it so perfectly, I think I may copy this and read it when we aren't having the best day. I wrote this post back in March....it's crazy how far we have come since then. Adele and her sister are both beautiful little miracles. I am going to check out your book. Thank you. Krista :)A Perfect Extra Chromosomehttps://www.blogger.com/profile/08589374230086756438noreply@blogger.comtag:blogger.com,1999:blog-6811945558877221270.post-62196323329069057282014-09-19T08:53:05.510-07:002014-09-19T08:53:05.510-07:00Hi Adele's Mommy!
It took me 14 years to come...Hi Adele's Mommy!<br /><br />It took me 14 years to come to the realization of the blessing I received giving birth to my "special" child, my son Andrew. Special child, DS baby, Liver Transplant kid, don't worry about the titles now because it's quite overwhelming to be given the responsibility of caring for a miracle. I believe mothers like us are put in charge of these 'angels', if you will, to teach us something and to teach the world something more. Adele will be followed, she will be watched, and she will be given many titles in her beautiful life but the one that matters the most that will give you such joy is when you realize her title is 'teacher'. My 'teacher' inspired me to write a book about our journey; From Transplant To Transformation, The Journey Of A Mother Who Gave The Gift Of Life Twice. I wish you all the best with yours. Cheers!Louise Camilleri Natural Health & Beautyhttps://www.blogger.com/profile/17201570863907989347noreply@blogger.comtag:blogger.com,1999:blog-6811945558877221270.post-20873026080406549912014-03-04T11:55:45.681-08:002014-03-04T11:55:45.681-08:00Jenny!! That is exactly it! Thanks for telling me ...Jenny!! That is exactly it! Thanks for telling me how I feel! ;) I want people to see Adele as just Adele. I had troubles getting out how I felt, but what you said is dead on! I am so glad that you gave me feedback, you know that when I ask for advice and feedback in my posts, it's directed to you! :)A Perfect Extra Chromosomehttps://www.blogger.com/profile/08589374230086756438noreply@blogger.comtag:blogger.com,1999:blog-6811945558877221270.post-9593562809620286102014-03-03T21:29:12.510-08:002014-03-03T21:29:12.510-08:00Ah, I have missed your posts! Loved the pictures.....Ah, I have missed your posts! Loved the pictures...especially the acrobatic one, and the bumbo seat takeover one! haha<br /><br />So my thoughts on why you don't really like hearing other people blurt out Adele has Ds...<br /><br />I know the feeling you're talking about. It's hard to describe what it is exactly. It's not embarrassment or shame...But it's a feeling that kind of makes your stomach sink a little in the moment. It's because the second someone says those words it becomes all they see. It becomes all your daughter is recognized for. Suddenly instead of being this amazing beautiful little person with a spunky little personality...She is just another "Downs baby". It's almost like those words, Down syndrome, seems to strip something from our childs individuality. At least that's how I feel. I feel like suddenly they don't see my child for who he is...They see what they *think* they know about Down syndrome. Anyway, hope that makes sense...Not saying this is what you feel, just what I have at certain times.<br /><br />Oh, and honestly I am astounded that some one actually asked if you take Adele out!! lol, what do they think you do keep her locked in the closet?! People are idiots! JChttps://www.blogger.com/profile/16040699928110444013noreply@blogger.comtag:blogger.com,1999:blog-6811945558877221270.post-52257709782678823072014-03-03T19:24:27.134-08:002014-03-03T19:24:27.134-08:00Thanks Angela. You know, if my kids are happy and ...Thanks Angela. You know, if my kids are happy and healthy, I am happy! :)A Perfect Extra Chromosomehttps://www.blogger.com/profile/08589374230086756438noreply@blogger.comtag:blogger.com,1999:blog-6811945558877221270.post-87036689401376869312014-03-03T17:01:53.903-08:002014-03-03T17:01:53.903-08:00That last picture is so adorable. She looks like s...That last picture is so adorable. She looks like such a happy baby. Glad to see you're back and doing well. You sound happier too :)<br />Angela @ Time with A & NStepping into Motherhoodhttps://www.blogger.com/profile/16278159650113398512noreply@blogger.com